Tuesday October 29, 2013

Greetings,

As many (if not all) of you are aware, the Lord in His wisdom called Home unto Himself our beloved son Trevor. Please find a copy of the obituary which will advise dates and times of visitation and funeral.  As family we would like to thank you all for your prayers and support throughout this time. 

 

Nordeman, Trevor Bradley

Peacefully and in the full confidence of his faith in Jesus Christ his Saviour, it has pleased the Lord, at His time, to call home on October the 28th, 2013, at the age of 16, Trevor Bradley Nordeman, much loved son of Albert and Tracy Nordeman nee Bos, and treasured brother of Lauren, Nicole, Lindsay, and Kyle. Dear grandson of Gerard and Johanna Nordeman, and Fred and Margaret Bos and the late Ricki Bos, all of Smithville. He also will be dearly missed by his extended family and friends. Resting at the Smithville Canadian Reformed Church 330 Station Street, Smithville where the family will receive visitors on Thursday, October 31st between the hours of 2:00 – 4:00 and 7:00 – 9:00 p.m. The funeral will take place on Friday at 11:00 a.m. at the church, with Rev. C. Bouwman officiating. Burial at Union Cemetery in Smithville will follow the service. Special thanks to the doctors and staff at McMaster Children’s Hospital wards 3F and 3Y for their devoted and loving care of Trevor over the past year. If desired, memorial donations to Guido de Brès Christian High School would be appreciated and can be made through Merritt Funeral Home (905) 957-7031 or merritt-fh.com. “Blessed is the man who perseveres under trial, because when he has stood the test, he will receive the crown of life that God has promised to those who love him.” James 1:12 (NIV)

Albert & Tracy

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Thursday October 24, 2013

Greetings,
Since our last update, the Lord in His goodness, love and compassion has continued to watch over Trevor and care for us as family. As mentioned in a previous update we were contemplating moving Trevor to a hospice in Grimsby (closer to home) but at the same time struggling with the idea of doing so as he is receiving such good care in McMaster. Upon inquiring, a decision was quickly provided as the hospice in Grimsby was fully occupied. In some way we think the nurses here were somewhat relieved, as many dropped hints that they wanted Trevor to stay. Many in the hospital know Trevor and he receives many visits from doctors and nurses alike whom have treated him from day one. The care and attention he receives is incredible.
Since Sunday Trevor’s condition has continued to decline to the point that on Tuesday we felt that the Lord was going to call Trevor home unto Himself. That morning when trying to feed Trevor or give him something to drink, it became obvious that he was no longer able to swallow and as a result everything that was given to him would continuously pool in his throat. Upon discussing this with the nurse it was decided that a feeding tube be given. Throughout the day the pooling of saliva in Trevor’s throat continued to remain an issue and therefore every fifteen minutes or so we would need to suction out his mouth. Thankfully this is no longer a problem as medication was provided to prevent this problem. All that day Trevor was in and out of it and his breathing was again an issue. The nurse on duty made mention that she too thought things were deteriorating and that Trevor may not make it through the night. Although an emotional evening as we as family said our goodbyes to Trevor we were also comforted knowing that this is also what he wanted. He is very much prepared to meet His Lord and Saviour. How the Lord has prepared him. God is so merciful and compassionate. Trevor loves to listen to Bible reading and is surrounded by so much peace as we pray with him and speak together of Gods promises. We assured Trevor that God has already prepared a place for him and that he was one of God’s covenant children. We read of this together from Isaiah 43 “Fear not, for I have redeemed you; I have summoned you by name; you are mine.” What a blessing and a comfort knowing that the Lord knows everything about Trevor most intimately and that He claims Trevor as His “own”. What more could we ask for…Trevor being summoned by name by the most High God!
Although that night we thought the Lord would take Trevor home, the Lord in His wisdom had other plans. Trevor awoke the next morning and was actually quite alert for the morning at least. How are plans are not the Lord’s plans. Once again we stand humbled knowing that the Lord is still using Trevor for His glory and the uplifting of so many.
Trevor’s friends have been an incredible support to him and not a day goes by in which they are not by his side. How the Lord also works here in their lives. Over the last number of days each of Trevor’s friends have have had an opportunity to be alone with Trevor in which to say their goodbyes (until we meet again) and share feelings and thoughts with him. Trevor may not be able to verbally respond in these visits but he does respond through a groan or a tear. He can understand what his friends are telling him and this is often confirmed by a “thumbs up”. We know that Trevor enjoys these times. We are so thankful for Trevor’s friends and through this situation have had the blessed opportunity of seeing yet another side of them. On several occasions we have had an opportunity to read and pray together as brothers and sisters in Christ and speak openly together of Gods love and promises. The other day with about 20 of his friends we stood by Trevor’s bedside and prayed together and read from Psalm 23. What a special moment…one we will most definitely never forget. To see the emotion come out from each of his friends and the faith they so openly share with us in their talk reaffirms that here to God is strengthening and providing for each one of them.
Today Trevor is very tired and only seldom opens his eyes. As he is nearing the end of his earthly journey we realize that the Lord is still using Trevor. It is amazing how the Lord uses someone like Trevor who can do nothing more than lie still in a bed to touch the lives of so many. How blessed we are to have such an awesome God through whom all things are possible. In James chapter 1 we read “Consider it pure joy, my brothers, whenever you face trials of many kinds”…are we able to take joy in this…absolutely…especially when we see how the Lord through this trial has provided so many blessings and has touched the lives of so many. May the Lord call Trevor home soon yet in the timeframe of His choosing, for only God knows when Trevor will have completed the race and his work on earth here done. Praise the Lord!!
God Bless!
Albert & Tracy
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Sunday October 20, 2013

Greetings,
Over the last number of days we have certainly noticed a further decline in Trevor’s condition. It appears each new day brings new challenges and noticeable change. Trevor is becoming more and more tired both mentally and physically and his strength is diminishing. He tends to nod off more frequently throughout the day. Trevor is no longer able to eat solid foods as he has a difficult time swallowing and therefore is now eating things such as mashed potatoes, pudding, jello etc. He is however still able to drink and often requests his favorite…chocolate milk! The nurses make sure they have plenty on hand. Trevor has had many visitors over the last number of days and while interaction is often difficult, it is nice to see so many including his friends come to visit, express their feelings and although difficult, in their own ways say there goodbyes. Although this can be emotional, we always try to encourage those who come (especially his friends) to open up and say the things they truly want to say. With boys especially it is often difficult to share feelings with one another but we’ve noticed time and again that once their feelings have been shared, they are glad they did and in turn a beautiful moment for all involved. We know Trevor likes it and has often said…those three little words (I love you) are so hard to say…but in my heart I do want to say them…I do want people to know. Although busy at the hospital, today did allow opportunity for some quiet time in which we could have yet (another) heart to heart with Trevor (what a blessing that the Lord has provided this time). We assured him of Gods promises and the love the Lord has for his children. Trevor does not doubt this and is comforted knowing that he is a covenant child of God. Trevor assured us that he is not afraid and even typed into his i-pad that he was ready to die. What a merciful, compassionate and loving God we have that He provides such comfort and peace as He prepares in His time, to take His child Trevor home unto Himself.
Who is he, this king of glory? The LORD Almighty, he is the King of glory. Ps. 24: 10
God Bless,
Albert & Tracy
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Friday October 18, 2013

Greetings

We just wanted to let everyone know that Trevor is now in hospital. We will try to keep the blog updated as frequently as possible as new developments unfold however we will do it in a slightly different way than previously. We will just provide quick updates as shown below. Please see below for developments from the past two days. We thank you all for your thoughts and prayers. We thank The Lord for his goodness in these difficult times.

 

 

Thursday October 17, 2013

Today was a much better day for Trevor. He was quite tired but very much at peace. He had some friends visit throughout the day which was appreciated but at the same time tiring and therefore they did not stay too long. Together along with advice from Trevor’s doctor it was decided that it would be best if Trevor did not return home. It is becoming much more difficult for us at home to look after Trevor but also as his condition worsen the need for closer medical attention and monitoring is required. Within the next few days we should have a better idea if Trevor will remain in hospital or if he will be moved into a hospice closer to home. The team at McMaster have been great and have also indicated that Trevor is more than welcome to stay…they would love to have him. Trevor is also very familiar with all of them and I think also enjoys the attention they give him…they look after his every need and more! Obviously there is some benefits of being closer to home and the “home” feeling of a hospice but again we will look closer into both options and ultimately leave the final decision up to Trevor. The doctor and nurse took some time today to assure us that Trevor is in no pain and that they do not anticipate this to change. The tumour appears to be mostly affecting his breathing at this time. Trevor also appears at times to be “in and out” of it mentally but overall still very much the same old Trevor. The Lord continues to provide Trevor and us all with much comfort and strength and for this we are very thankful.

God Bless!

Albert & Tracy

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Wednesday October 16, 2013

This afternoon Trevor was admitted to McMaster Hospital as a result of laboured breathing. We think a lot of this had to do with his cold but he was most certainly experiencing some difficulty. On top of this he was also panicking somewhat so obviously this did not help matters. Trevor really wanted to go to hospital where naturally he feels “safe” and at home as he knows many of the people at McMaster. As normal Trevor was very warmly received and they immediately set up a room for him. They gave him oxygen and a suction tube which helped substantially. Doctors have also indicated that Trevor is more than welcome to stay in hospital until he passes away if that is what we desire. Trevor will stay for at least a night or two after which we will re-evaluate what would be best for him. Obviously at home things are becoming much more difficult with mobility and his inability to speak. When asked Trevor did indicate that he would like to remain in hospital for his remaining days but again we will see what the next few days bring before we make any definite decisions. We will continue to keep you informed as things unfold. As has been very evident in the past…our plans are not always God’s plan and therefore we leave everything in the Lords Hands. What a comfort!

 

God Bless!

 

Albert & Tracy

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Friday September 27, 2013

“Your love, O Lord, reaches to the heavens, your faithfulness to the skies.” Psalm 36:5

It has been two months now since the last update and with thankfulness to the Lord up until recently not much has changed in Trevor’s condition. As treatments had stopped and therefore no longer having to make daily hospital visits, we as family were blessed with being able to spend some quality time together and in turn the opportunity to get away together on several occasions. What a blessing from the Lord!

In the last few weeks however, much has changed in Trevor’s physical capabilities and this decline appears to be continuing at a gradual yet steady pace. Trevor is now unable to walk without assistance and therefore needs someone beside him while he walks throughout the house and the need of a wheelchair when we go out. Trevor’s speech has also declined further where at times it is much more difficult to understand what he is saying. His swallowing is also becoming more of an issue and at times he experiences difficulty swallowing certain foods. It appears as if he is losing muscle control in his throat and in turn food and liquids go down the wrong hole and therefore he is often coughing. This is being monitored very closely. Although undergoing many physical changes it is with thankfulness that he is experiencing no pain.

Doctors and nurses have been coming to the house on a regular basis to monitor Trevor as well as to provide us with helpful tips and ideas as to how best handle Trevor as new symptoms and situations continue to present themselves. This is obviously very much appreciated. As mobility is becoming more and more an issue each day, Trevor is now using various items to assist him (Electric Hospital Bed, Walking Cane, Commode, Shower Bench etc.)

In terms of how Trevor is coping spiritually and mentally it is with thankfulness to our Lord that he is doing very well. Trevor is still able to attend church each Sunday and in turn strengthened and uplifted by the pure preaching of Gods Word. The Lord in His love and mercy has provided Trevor with a real sense of comfort and therefore in turn Trevor is very much at peace. Each day again we stand in awe of what the Lord provides not only for Trevor but each one of us as family. So evident is the love of our Lord!!

As each day passes and Trevor continues to decline it has become very evident that the Lord in his love provides all that is necessary. Although we do not know the days remaining for Trevor we take each day anew as a blessing from the Lord. In all things we acknowledge that the Lord is in control and that He has a plan for Trevor and for us all. We know that Gods plan is so much bigger than our plans. We move forward in the sure confidence that in all things God works for the good of those who love Him. How blessed we are to be His covenant children!

“How great is the love the Father has lavished on us, that we should be called children of God! And that is what we are!” 1 John 3: 1a

As family we would like to thank each one of you for your prayers throughout this past year (yes it has been just over one year since Trevor was first diagnosed with his brain tumor) Your love and support has meant so much to each one of us!

God Bless!

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Saturday July 27, 2013

“One thing I ask of the Lord, this is what I seek: that I may dwell in the house of the Lord all the days of my life, to gaze upon the beauty of the Lord and to seek him in his temple. For in the day of trouble he will keep me safe in his dwelling;” Psalm 27: 4, 5a

Although only a month has passed since our last update so much has happened in such a relatively short period of time.  Throughout this time we have experienced many ups and downs but the nearness of our Heavenly Father has not wavered. What a blessing! What a comfort to be a child of God.

Over the last month Trevor has been undergoing daily hyperbaric oxygen treatments at Hamilton General Hospital. For two hours each morning he lays inside a sealed glass tube where he receive 100% pure oxygen. Another name for this treatment is called a “dive” as once the desired pressure inside this tube is obtained it is comparable to being 67 feet under water. The intent of this treatment is to help in the recovery of tissue damage and in Trevor’s case damage sustained from radiation treatments. Although Trevor feels good while inside the tube and undergoing treatment he unfortunately has not realized any change or improvements to date.

Combined with the daily hyperbaric treatments Trevor has continued on a low dose of steroids (to help with swelling) while also taking medication to thin his blood in order to help eliminate the possibility of any small blood clots and improve blood flow.

Unfortunately, although still undergoing the above mentioned treatments,  Trevor’s physical symptoms continue to get worse. A week ago Thursday  (July 18) Trevor was admitted to hospital (McMaster) over night as the numbness he has been experiencing in the left side of his face moved into the left front portion of his tongue. As a result Trevor now slurs when he talks. That same night and into the next day Trevor also at times experienced the inability to speak where he would open his mouth to say something but could not get the words out. This was obviously very frightening for Trevor but with thankfulness to the Lord this did not continue.

While still in hospital and as Trevor was scheduled for an MRI the following week anyway we asked if there was any way they could move up his MRI. Although they agreed to keep Trevor for the weekend and run MRI’s at McMaster they needed a special MRI which could only be done at the Juravinski and although they inquired there was no way of getting this changed. With this in mind we decided to return home and have all the MRI’s completed the same day as scheduled at the Juravinski hospital.

This past Thursday (July 25) Trevor had his MRI’s completed with the results provided yesterday. Upon our request the doctors agreed to provide results the very next day considering Trevor’s circumstances and his recent changes in symptoms.  Upon hearing from the doctors, they asked that we come in for the results without Trevor which confirmed our thoughts that the results would not be favorable. The doctors confirmed our fears that the tumour has again begun to grow and that it has grown very extensively. This was very evident in the before and after scans. We were also told that unfortunately there was nothing more they could do for Trevor medically. All options have been exhausted. As a result the doctors in their medical experience and opinion suggested that Trevor may only have a few months left with us. It was also suggested that we stop all current treatments and medications except for his steroids which will hopefully continue to help somewhat with the swelling.

Later that day we broke the news to Trevor…then along with Trevor to the rest of the children. Although many emotions and tears the Lord provided strength. The Lord most certainly prepared Trevor mentally for this news as well as provided Trevor with a special measure of His grace. Trevor knows and believes that he will soon be with His loving Saviour where there will no longer be any tears and suffering. What a comfort!

We ask that you continue to pray for Trevor that he may receive the peace of mind which the Lord has so graciously provided him thus far throughout this trial.

We as family move forwarded taking each days as it comes from the Lord. We know that he has a plan for Trevor and for us all. As we tell Trevor, the Lords plan although unknown at this time is so much bigger than the plans we have for our own lives.

“The Lord is my light and my salvation – whom shall I fear? The Lord is the stronghold of my life – of whom shall I be afraid? Psalm 27: 1

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Wednesday June 26, 2013

“From the rising of the sun to the place where it sets, the name of the Lord is to be praised.” Psalm 113: 3

The Lord in His goodness to us has again provided much patience and strength and for this we are very thankful, as much has happened over the course of the last number of weeks.

As indicated in the last blog update we were very encouraged to hear from the doctors that the swelling Trevor was experiencing on his brain appeared to be as a result of the breakdown (treatments) rather than the further growth of his tumor. As a result Trevor was placed on a low dose of steroids and the doctors would continue to monitor his situation by regular visits.

A few weeks ago Trevor noticed that some of his original symptoms were beginning to return and of course this news was immediately passed along to his doctors. They in turn placed Trevor on a higher dosage of steroids and assured Trevor that he should notice results within two or three days. After almost a week having gone by and his symptoms progressively getting worse we again approached his doctors. Some changes were again made with regards to the steroids and we were asked to provide regular updates. After almost another full week and no improvement the doctors felt it best for Trevor to come back into the hospital in order to discuss this matter further.

Hence, this past Friday we met with his doctors where they informed us that the steroids were not working and that we would need to look at alternative treatment. They did advise that the steroids should have worked but in their experience they have come across a few instances where the steroids for some reason do not respond to swelling after treatment and unfortunately this appears to be the case with Trevor. As we were going to be seeing the doctors again on Tuesday anyway, we asked if we could double his steroids dosage (for the weekend only) just to be certain that this avenue of treatment has truly been exhausted. They agreed but as suspected the higher dosage did not have any impact.

Yesterday (Tuesday) we met with his doctors in order to discuss where to go from here. As indicated to us on Friday they did have a few different options. It was decided that Trevor remain on a very low dose of steroids while he begins a new drug which is used to thin the blood and in turn will hopefully eliminate any small blood clots and improve blood flow. This will be combined with a vitamin E pill. It was also decided that Trevor go to the Hamilton General Hospital and undergo hyperbaric oxygen treatment. Tomorrow we will meet with the doctors at the General and determine a schedule for this treatment. This most likely will start next week and last for approximately two weeks. Treatments will be daily and last anywhere from 2-2.5 hours. The main purpose of this treatment is to allow for additional oxygen into the tissue which in turn results in faster healing.

There is also one more drug that the doctors would like to proceed with which we will learn more about later this week however this particular drug has really only been used on adults. There has only been one other case in Hamilton (and a handful in Canada) where this drug has been administered to those under 18 years of age. The drug (like every other) comes with its side effects but the doctors feel that this is really something we should proceed with. We are awaiting more details on this drug as it is not covered by OHIP and before proceeding they just want to see if the hospital will possibly look after all or at least a portion of the costs associated with this drug.

As you can see there is a lot going on at the moment as doctors are trying to find a way to reduce the swelling causing these symptoms. The doctors have been very upfront with Trevor and have also told him to prepare himself that some of these symptoms may be permanent. They also are not ruling out the fact that the tumor may be growing again and in turn this may be the reason for some of these symptoms. We will have a clearer picture of that again once we go for another MRI scheduled for July 17th. This may however be moved up if there has still been no improvement over the next week or two.

With regards to some of the physical symptoms Trevor is currently experiencing: He has lost almost 100% of the use of his right hand. His right side is also very limited to where he cannot place his right arm over his head and he walks with quite a limp where the right leg is dragging at times. His double vision is now on a permanent basis. We have talked with his doctors but they would like to wait until at least October before they do anything drastic with his eyes. A good portion of the left side of his face is also numb. As a result Trevor is limited to what he can do. He was exempted from all of his exams and it appears as if he will be unable to work this summer.

But these are physical limitations. Trevor has not lost his sence of humor and although he has his moments (as do we all) he continues to be very upbeat and positive. Trevor sees the hand of the Lord at work in him and acknowledges that the Lord is providing him with the strength required in order to deal with this trial.

We go forward in the comfort that “in all things God works for the good of those who love Him, who have been called according to His purpose.” Romans 8: 28

We thank you all so much for your cards, thoughts, prayers, kind words etc. This means so much to us all. We have been truly blessed.

Praise the Lord!

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